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NJCDD New Jersey Council on Developmental Disabilities

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People & Families Spring 2012

People & Families Spring 2012

TABLE OF CONTENTS

From Front Cover to Page 15:

Page6
FROM THE EXECUTIVE DIRECTOR
People with Developmental Disabilities Deserve Real Jobs for Real Pay "But Much is Needs to be Done to Make that Goal a Reality"

Page7
In Memoriam
Stephanie Brooke Furrer
1981-2011

News & Notes

The Monday Morning Project Holds its First Training Event of the New Year • Governor Christie Open to Ways to Improve Anti-Bullying Legislation • US Justice Department to Take a Closer Look at Virginia’s Developmental Disabilities System • DD Advocates in Oregon File Suit Against State Government for ADA Violations • New Effort Emerges to Curb Restraint & Seclusion in Schools • College Student Creates a Virtual Community for Students with Disabilities • Upcoming Events

From Pages 16 to23:

Page16
From Education to Employment
New Frontiers in Assistive Technology Barriers to Learning, Employment, and Independence Are Falling Thanks to Cutting-Edge Technology

From Pages 24 to 35:

Page24
Technology Facilitates Independence
Morristown Entrepreneur Uses ‘Eye Gaze’ Technology in His Life and Works

Page30
INFORMATION ABOUT FAMILY SUPPORT

Page32
Microboards
Putting Resources Behind the Power of Choice
A Bold New Way to Look at Supported Living Arrangements

From Pages 36 to 48:

Page36
Bringing employees to the Table
Working Toward Closing New Jersey’s Institutions While Treating Workers with Respect
What Must be Done to Ensure Everyone’s Voices Are HeardPage36

Page40
Rosalyn Hickman
Taking Pride in a Job Well Done
Millville Resident Shines Once She Finds a Job She Loves

Page42
The Criminal Justice System and People with
Devlopmental Disabilities

Why Some People Are Vulnerable
What Law Enforcement Officials Need to Consider When Interacting with People with Developmental Disabilities

 

 

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National and local news about disability issues, and updates on the Monday Morning Networks.
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People & Families Magazine Archive

Health Access for Women
A publication focusing on health care for women with disabilities in New Jersey. Each issue includes a feature story and information on resources, research and advocacy for women with disabilities in the area of health and wellness.
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Common Ground - Latest Issue
Newsletter dedicated to increasing dialogue between stakeholders in New Jersey's special education system.

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People and Families Winter 2012 A Dream Realized

People & Families Fall 2011

CONTENTS:

From Front Cover to Page 13:

"An Institution is not a home"Campaign

TABLE OF CONTENTS

Page6
FROM THE EXECUTIVE DIRECTOR
The Council turns 40 and continues
to evolve.

Page7
NJCDD News & Notes
Dr. Lozano Receives Humanitarian Award; Restraint, Seclusion Overlookedin Education Bill; Autism Act; Concerns As Down Test Hits Market; Medicaid Update; Stearns Bill Promotes Fair Wages for Workers with Disabilities;
Upcoming Events

From Pages 14 to25:        

Cover Story
Page14
A Dream Realized
Matthew Byra On His Own Shared Living with the Byra and Nomorosa Families


Page22
STILL READY AND ABLE

Business and Employment Specialists Continue to Break New Ground for Workers with Developmental Disabilities

From Pages 26 to 35:

Page26
SELF EMPLOYED
Not For Everyone
Another Employment Option for People with Disabilities

Page28
INFORMATION ABOUT FAMILY SUPPORT

Page30
NEW CHANGES TO THE DEVELOPMENTAL DISABILITIES FAMILY SUPPORT WAVIER

Page32
JOE EHLERS
I Like Living by Myself
Supportive Living Works for Middlesex County Man

From Pages 36 to 44:

Page36
PATRICE JETTER
They Said She Couldn't Live Independently. They Were Wrong. PIP Graduate Keeps Surprising Everyone but Herself

Page39
WORDS HAVE POWER
Self Advocate Carly Okyle Shares Her Thoughts About
NJCDD's Developmental Disabilities Awareness Day 2011

Page43
BREAKING THE DEPENDENCY CYCLE
Like Their Peers Without Disabilities, People with Developmental Disabilities Build Independence and Self Sufficiency Most Effectively on Positive Expectations
and a Foundation of Assets

 

   
People and Families Fall 2011

People & Families
Fall 2011

CONTENTS:

From Front Cover to Page 11:

"An Institution is not a home"Campaign

TABLE OF CONTENTS

Page6
FROM THE EXECUTIVE DIRECTOR
Never Underestimate People with
Intellectual and Developmental
Disabilities

Page7
NJCDD News & Notes
Lowell Arye Ends Tenure at ABCD;
New Jersey Enacts the Nation's Toughest
Anti-Bullying Law; Study: Bullying
More Common Among Students with
Disabilities;'Wandering' Diagnosis Gets
Green Light; Vineland Closure Status

From Pages 12 to23:             

Page12
Transition
For Students with Disabilities
in Urban Schools
A Tough Change Is Even Tougher
for Young Adults in the Cities

Cover Story
Page18
PREPARING FOR THE UNKNOWN
T ransition Services and Support
for Students with Autism
Luck and Determination Help
Matt Weiss Negotiate the Difficult
Move to Adulthoo

From Pages 24 to 35:

Page24
BOB AMOS, PARTNER'S GRAD
Self Taught and Motivated
A Lifetime of Teaching and Learning
for this Self-Made Techy and Advocate

Page28
CRIMES AGAINST PEOPLE WITH DISABILITIES
Recent Progress But Still Much Work to Do New Studies and Techniques Show
Progress but People with Disabilities
Still Vulnerable at Too High a Rate

Page34
INFORMATION ABOUT
FAMILY SUPPORT

From Pages 36 to 48:

Page36
EMILY ANN SCHAEFER

Leading Advocate and Facilitator
Long-time Hunterdon County
Advocate Anchors Monday Morning
Network

Page40
GREG WILSON
His Main Goal is Advocating
for Others
Hunterdon County Co-Facilitator
Supports Community Inclusion for
People with Developmental Disabilities

Page43
BREAKING THE DEPENDENCY CYCLE
Like Their Peers Without Disabilities,
People with Developmental Disabilities
Build Independence and Self Sufficiency
Most Effectively on Positive Expectations
and a Foundation of Assets

   
People&Families Summer 2011 ESTELLE MCGURK Living in the Community "It's Like a Second Family Here"

People & Families
Summer 2011

CONTENTS:

From Front Cover to Page 11:

"An Institution is not a home"Campaign

TABLE OF CONTENTS

Page6
FROM THE EXECUTIVE DIRECTOR
Living with Us—It's Their Right
An Institution is not a home

Page7
NJCDD News & Notes
Dr. Spitalnik appointed to President's
Committee; Medicaid Fact Sheet;
LeBron James Apologizes for 'R-Word'
Slip; Community Housing Proposed;
Alabama Closes Last Developmental Center

From Pages 12 to21:             

Page12
GOV. CHRISTIE PROPOSES
CLOSING VINELAND
DEVELOPMENTAL CENTER

Aft er 16-Year Delay NJ Governor
Finally Proposes Another DC Closure

Cover Story
Page16
ESTELLE McGURK

"It's Like a Second Family Here."
Former Vineland DC Resident Settles Into
Community Living

Page18
MICHIGAN CLOSES LAST
INSTITUTION

A Blueprint for Successfully Moving
Beyond Large Congregate Care Facilities

From Pages 22 to 33:

Page22
SHARON SAMCHUK
"It Feels Lovely."
Ten-Year Vineland Resident Moves Into
the Community and Loves It

Page24
INFORMATION ABOUT
FAMILY SUPPORT

Page26
ADVOCATES IN THE U.S. SENATE
Frank Lautenberg and
Robert Menendez
"Other States Only Wish" Th ey Had
Statesman of the Caliber of New Jersey's

Page30
GET FIT
A Hands-On Approach
Council Grant Launches Growing
Fitness Options For People w

From Pages 34 to 40:

Page34
KATHY AND JOE DOUGHERTY
Getting Fit Together
Daughter and Father Team Up for
Health and Fitness

Page36
CHRISTINA KNORR:
"I don't know where I would have
ended up."
Youth Leader Joins the Movement and
Talks About Her Roots

 

   
Spring 2011 People and Family Magazine cover

People & Families
Spring 2011

CONTENTS:

From Front Cover to Page 9:

"R" Word & Just Say Something Campaigns

TABLE OF CONTENTS

FROM THE EXECUTIVE DIRECTOR - The Next Five Year Plan: The Council gathers solid data for its next planning cycle

NJCDD News & Notes

From Pages 10 to21:                        

Cover Story

ADD: PROJECTS OF NATIONAL
SIGNIFICANCE
New Jersey teens, young adults and
military families benefi t from federal
grants through the Administration on
Developmental Disabilities

THE PSE&G CHILDREN'S
SPECIALIZED HOSPITAL

Premier health care facility nurtures the
potential and makes spectacular progress
with children with signifi cant trauma and
developmental challenges

From Pages 22 to 31:

Information About Family Support

SEAN O'BOYLE
A Changed Man

Moving out and on with a Partners in
Policymaking Grad

FAMILY SUPPORT WAIVER
New Jersey draft s a new Medicaid waiver
for family support services

INFORMATION ABOUT
FAMILY SUPPORT

THE TORRES
Jumping Through Hoops to Educate
Children with Disabilities

Partners Grads Rafael and Alison Torres
are tough advocates for their children
and their colleagues

From Pages 33 to 40:

PERSONAL DECISION-MAKING
AND GUARDIANSHIP

In a guest column attorney Paul Prior
outlines how guardianship laws are
still evolving

READY AND ABLE
New study dispels myths about
employer conceptions of people with
developmental disabilities in the
workplace


   
People and Families 2011 Cover Betsy and Joan Smith Teamwork

 

People & Families
Winter 2011

CONTENTS:

From Front Cover to Page 13:

"R" Word & Just Say Something Campaigns

TABLE OF CONTENTS

FROM THE EXECUTIVE DIRECTOR - The Future of the Disability Advocacy Movement

NJCDD News & Notes

From Pages 14 to25:                        

SHARON LEWIS
TAKING THE HELM AT ADD

Oregon Mom, Advocate and Policy
Professional Appointed as Executive
Director of the Administration on
Developmental Disabilities

TEAMWORK
BETSY AND JOAN SMITH

Council Member’s Advocacy Work
Benefi ts from Support at Home
and School

LOST—AND THEN FOUND—
IN TRANSLATION

The Arc of Hudson Reaches Out to
Support Underserved Communities

Building Capacity in Hudson and
Surrounding Counties

From Pages 26 to 36:

Information About Family Support

ELLIE CAMPOLLO
Mom, Turned Advocate
and Mentor

GROCERY STORES AND
SYSTEMS CHANGE

A Way Forward for Providing
Real Choice in the Delivery
of DD Support Services

DAVE TAG
A TENACIOUS ADVOCATE

MONDAY MORNING
ADVOCATES HELP ASSESS NEW
MEADOWLANDS STADIUM
(NMS) ACCESSIBILITY

From Pages 37 to 48:

DAWN APGAR JOINS
DHS TEAM

Well -Known Researcher and Public
Offi cial Appointed as Deputy
Commissioner

BALANCING ACT
PROVIDING APPROPRIATE
SPECIAL EDUCATION SERVICES
WITH LESS MONEY

Facing the Realities of the Current
Education System

 

     
People and Families Fall Cover

 

People & Families
Fall 2010

CONTENTS:

From Front Cover to Page 13:

"R" Word & Just Say Something Campaigns

TABLE OF CONTENTS

FROM THE EXECUTIVE DIRECTOR - Doing the right thing, and saying something about it

NJCDD News & Notes

From Pages 14 to25:                        

Andrew Mcgeady
Getting Involved With One of New Jersey’s Up and Coming Young Advocates

Health Care Reform and People With Developmental Disabilities
What the Landmark Reform Legislation Means for People with DD and their Families

The Flanagans
Living Tight
How Family Supports Help Keep a Mother
and Her Daughter Holding On

From Pages 26 to 37:

Information About Family Support

The Next Generation Of Family Support
Family Support in New Jersey:
A Point-In-Time Assessment

William Ditto
Finding a 39-year Focus
DDS Director Retires After Nearly 40
Years of Service

From Pages 38 to 52:

Well Served
Frank Caragher and the Arc of
Union County

An Iconic NJ Service Provider Keeps
Finding Ways to Meet the Ongoing Needs of People with Developmental Disabilities

Russell Fried
Keeping Tabs and Quietly Filling His Role
South Jersey Self-Advocate Keeps Track of What’s Going on and Plays a Key Part

Putting A Face on the R-Word Campaign
Laura and Brian Haney, and Friends,
Get Creative in the Fight to Stop the
Use of Disrespectful Language

 

     
People&Families Summer2010

People & Families
Summer 2010

CONTENTS:

From Front Cover to Page 9:

"R" Word & Just Say Something Campaigns

TABLE OF CONTENTS

FROM THE EXECUTIVE DIRECTOR - Doing the right thing, and saying something about it

NJCDD News & Notes

From Pages 10 to19:                               

'It's Great to be free"
Council Member Todd Emmons:
Living the Sweet Life

On Going Reports from the Field

Information About Family Support

From Pages 20 to 28:

Joe Young, "Keepin' Em' Honest"

About that other Legislation-Not the Budget

From Pages 29 to 40:

No Longer Missing Out

Cover Story
Adorn Beauty Salon

On the Media

 


     

Choosing The Right Adult Services

 

People & Families
Vol. 4, No.2 Spring 2010

CONTENTS:

From Front Cover to Page 15:

"R" Word & Just Say Something Campaigns

TABLE OF CONTENTS

FROM THE EXECUTIVE DIRECTOR - Doing the right thing, and saying something about it

NJCDD News & Notes

Gary Rubin "Telling it like it is"

From Pages 16 to29:                               

Anatomy of a Crisis, "The Hayes Family: Fight for a Better Way"

Myrta Rosa, Ready and Waiting

Help for People with Developmental Disabilities Needs Community Basis

From Pages 30 to 45:

Deborah Spitalnik, "There Is Still So Much to Do"

Information About Family Support

Reimbursement

Cover Story: Monmouth University Constructs Accessible Activity Center: Council Members Chris Miller and Walt Fernandez Team Up Out in the Field.

Advancement Through Law "A Brief Perspective"

Preparing for the Next 5 Years "The Council Plans for the Future"

From Pages 46 to 60:

Interview and Review "Temple Grandin"

The "R-Word" Campaign

 

To see previous issues go to the People and Families Archive:

 

 

 

 

 

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